Bay Area Association of Pediatric Hematology/Oncology Nurses

BAPHON

PALLIATIVE CARE RESOURCES

 

For Nurses:

General Palliative Care:

  • National Institute of Nursing Research (NINR) 

Information for nurses and providers on the role of pediatric palliative care

https://www.ninr.nih.gov/newsandinformation/conversationsmatter/pcproviders

  • Quick Sheet from NINR

https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508c_AtaGlance.pdf

  • Nausea Guidelines: Oncology Nurse Society guidelines for management of CINV

 https://www.ons.org/practice-resources/pep/chemotherapy-induced-nausea-and-vomiting/chemotherapy-induced-nausea-and-0

http://advancingexpertcare.org/patient-family-sheets/

 

Good Article:

http://journals.sagepub.com/doi/abs/10.1177/1043454212471725
 

Further study:

  • Core Curriculum for the Pediatric Hospice and Palliative Nurse:

 https://www.hpna.org/HPNA_Item_Details.aspx?ItemNo=978-1-934654-54-5

 

For Parents:

English:   https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508cBrochure_2015-7-7.pdf

Spanish:    https://www.ninr.nih.gov/sites/www.ninr.nih.gov/files/NINR_508cBrochure_Spanish_2015.pdf

  • Parent's Perspectives on Pediatric Palliative Care:

https://www.ninr.nih.gov/sites/default/files/NINR_508c_FamilyStories_0.pdf

Parent designed videos and guides to dealing with having an ill child, communication, decision making, stress, worry and the role of a palliative care team

Introduction to pediatric palliative care, services provided, and role of the team in supporting families