Bay Area Association of Pediatric Hematology/Oncology Nurses
PALLIATIVE CARE RESOURCES
For Nurses:
General Palliative Care:
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National Institute of Nursing Research (NINR)
Information for nurses and providers on the role of pediatric palliative care
https://www.ninr.nih.gov/
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Quick Sheet from NINR
https://www.ninr.nih.gov/
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Nausea Guidelines: Oncology Nurse Society guidelines for management of CINV
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Fatigue: http://journals.
sagepub.com/doi/abs/10.1177/ 1043454206293269 -
Healthy Boundaries: APHON Position Statement on Social Media, also includes piece on compassion fatigue: http://aphon.org/
UPLOADS/Education/pp6.pdf -
Stress in Peds One Nurses: http://journals.
sagepub.com/doi/abs/10.1177/ 1043454212458367 -
Teaching Sheets on Palliative Care Topics from Hospice and Palliative Nurse Association:
http://advancingexpertcare.
Good Article:
http://journals.sagepub.com/
Further study:
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Core Curriculum for the Pediatric Hospice and Palliative Nurse:
https://www.hpna.org/HPNA_
For Parents:
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NINR YouTube Introduction to Pediatric Palliative Care: https://www.youtube.com/watch?
v=bEx-n9sDFd8 -
Pediatric Palliative Care, brochure from NINR
English: https://www.ninr.nih.
Spanish: https://www.ninr.nih.gov/
- Parent's Perspectives on Pediatric Palliative Care:
https://www.ninr.nih.gov/
- Courageous Parents Network: https://
courageousparentsnetwork.org
Parent designed videos and guides to dealing with having an ill child, communication, decision making, stress, worry and the role of a palliative care team
- Center to Advance Palliative Care: https://getpalliativecare.org/
whatis/pediatric/
Introduction to pediatric palliative care, services provided, and role of the team in supporting families